What’s Your Blindness?

by Carly Eden Stokes | Dec 21, 2021 | Blog, News

A letter from VLANJ’s CEO, William Schuldt:

What can change the ordinary to the extraordinary? What can help a person with vision loss find happiness and fulfill their dreams? With your help, Vision Loss Alliance of NJ has been doing just that for 78 years.

Ming, a wife, a mother, a writer, and a Vision Loss Alliance of NJ trustee, was born with a genetic disorder that would affect her sight and will eventually lead to total blindness. Today, she is legally blind and can only see light and shadows. While she describes her life as ordinary — I want to share with you how someone with vision loss accomplishes the extraordinary, while living that ordinary life.

You have most likely experienced a day when the demands are varied and often exhausting — with vision. Ming describes her typical morning much as yours: waking early, choosing clothes, dressing, making breakfast for the family, and getting the children ready for school. After checking that each child has her homework, snacks, water bottles, and anything else needed for the day, you take them to school. Imagine for a moment how you would get through your morning without full use of your vision, as Ming does. She will frankly say, “Parents who are blind face the same challenges as other parents, but must find different ways to address those challenges.”

As a trustee who has lived with sight loss and learned different ways of doing things, Ming highlights VLANJ’s unique approach:

• VLANJ core programs are a combination of skills-based classes and sessions that focus on mental well-being. These comprehensive services provide emotional support while covering all the basic skills that people with vision loss need to relearn. It is important to have the fundamental skills in place before moving forward, which leads to the next point.

• What sets VLANJ apart from other providers is that services do not stop at basic skills. Our range of programs, while building on basics, helps clients apply those skills to their unique lives. This is critical, because as people lose their vision, they not only want to do the basic things in life but, like everyone, they want to keep learning and enriching their lives. Ming believes that you can cultivate well-being and happiness despite losing your vision when you have the skills and supports to make that choice. For Ming, her happiness meant regaining her lost passion — ballet. She wanted to feel that joy again. After what she calls “endless procrastination,” she faced her fear of not being able to dance with her limited sight. As Ming stood in the entrance to her building clutching her cane and sending her usual message to the Uber driver to look out for her, she was full of questions. “Will I find the studio?” “Will I be able to keep up with the class?” “Will they mind that I cannot see?”

She considered each challenge. “I couldn’t see to walk or drive to the class so I ordered the Uber and told the driver I couldn’t see. He helped me. I couldn’t find the studio, so I rang the doorbell and was guided by a friendly person who occupied the first floor of the building. He helped me find the studio. I couldn’t see the teacher demonstrating, so I listened very carefully to his instructions. I was dancing!”

It was far from perfect, but for each obstacle there was a workaround. Ming explains, “I know we’d rather not need workarounds; I’d much prefer to just go to ballet class like everyone else. But it was worth the struggle, as my reward was the enjoyment of dancing and a confirmation that I could do this, even if it was hard.”

Now that Ming is dancing again, her challenge to you is this: “What is your ballet? What would fulfill your dreams and spark your passion? What is your blindness? What is holding you back? I urge you to get past the obstacles and live your dreams! The more we can find enjoyment in life without our “blindness” as the focus, the more peace we will feel. This is a journey we all can take, but it is sweeter if we have company along the way.”

Please make a gift today that will not only help those with vision loss find their passion, but may also help you to up your happiness game! You can support VLANJ here: https://www.vlanj.org/donations/

Yours sincerely,

William Schuldt, CEO

P.S. Your gift means that when a person loses their vision, they can access the support they need to keep living their lives. Please give your proudest gift today.